For Nora, Who Gives Us Hope.

428881_3634519710730_691058417_nA few months ago  Lauren contacted me on my blog and shared her home birth story about her daughter, Nora, who had trisomy 18. When I wrote back I assumed that Nora had passed away like the other babies with this illness that I know. Nora is fifteen, Lauren replied. I was surprised and grateful that Lauren answered my questions. Yes, Nora has full trisomy 18. Yes, Nora breathes on her own. I was so touched by the story and by Lauren’s openness with me that I dedicated a blog post to Nora. “Trisomy 18: The Range of Possibilities” for Nora, who gives us hope.

Lauren wrote to me on Easter Sunday to tell me that Nora transitioned to her next life on March 16th. She passed away peacefully at home, where she was born, surrounded by her mom, dad, brother, and sister. We laid her out at home afterwards, Lauren wrote. Nora was buried in a natural wood cocoon decorated by her family and friends who visited. (See below.) I sense Nora’s gentle spirit and I love the  way that her family handled her body and burial. Soft. Holy. A gentle ritual for a beautiful daughter, sister, friend.

nora cocoon

My book about my pregnancy with Mary Rose is almost done. I hope to turn in the very final draft by the end of this week. Nora is a part of my book because her life touched my life in that special we-are-one-with-everything-in-the-universe way that the mystics speak of in different spiritual traditions. I used to be surprised by the synchronicity of my life, but now I just smile and say, Thank you. I am now friends with my Isaiah Promise mentor Cubby’s daughter, Mary Frances. I am friends with Laura, a woman I had seen at the Farmers Market when I was pregnant with Mary Rose. Everywhere I turn I am connected to others by beautiful threads of light.

It is not only the Hindus who say that life is a dream. My maternal grandmother used to say, Η ζωή είναι ένα όνειρο. Life is one dream. It won’t be long before we are all together with our loved ones on the other side of the veils. Until I meet you at the holy gate, Nora, please give Mary Rose and Cubby a hug from me and Mary Frances. Thank you for your far-reaching Light and presence in our lives.

 

Photos used with permission of Lauren Sample.

Author: Dianna

DIANNA VAGIANOS ARMENTROUT is a published writer, teacher, workshop facilitator and poetry therapist. She graduated from Adelphi University’s Honors Program and earned her MAW from Manhattanville College. Dianna’s pregnancy with her daughter, Mary Rose, who died an hour after birth of trisomy 18, changed her life completely. Her blog, Walking the Labyrinth of My Heart, was launched in April 2015 as a way of offering support to others going through pregnancies with life-limiting and fatal diagnoses.

2 thoughts on “For Nora, Who Gives Us Hope.”

  1. O, so tender… May God ever bless her Am so touched by these “threads of light.” And, profound thanks for your angelic box of thoughtfulness for a mother who lost her baby through miscarriage . She named her, Dianna, because of your insights. The family is healing because they named their baby!!!!!

Leave a Reply

Your email address will not be published. Required fields are marked *